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Friday, August 30, 2013

fighting the fight

This morning I got up, got the kids off to school and started to make Challah. Yes, I have to bake my own challah so that my youngest can celebrate a safe Shabbat. Kneading the dough is actually therapeutic.
I am feeling down and defeated. I will continue on but, right now, I am down. I am so tired of fighting the fight. This time of year is awful. I hear story after story about schools that are not accommodating children with food allergies. Why does it have to be so difficult? We are not crazy helicopter parents. We just want our kids safe and included. Aren't children more important than food? We are not asking for the moon and the stars.
I just need a break. That doesn't happen in food allergy world. It is a 24/7 job. Of course I would do anything for my child but an hour off, just a little bit of time without worry would be great.

We need food to live. We do not need food to have a life. Why does everything have to include food?

2 comments:

  1. As two with various disabilities including FA and no family involved in our lives. This resonates with me. Having special need kids can just be so isolating and no one knows the mental energy involved with being so diligent all the time. You are not alone. I hope you have a great holiday you are in my thoughts.

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  2. Thanks. I know that you get it.
    I hope you have a great weekend and yes you are superwoman!

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